One in a hundred babies born today will be born with congenital heart disease. And for these babies, their first months are spent in the hospital.
But now new technology allows parents to take their children home knowing that doctors are watching them closely.
Little De Angelo Jr. smiled a lot last year.
She was born with a complicated egg of right heart hypoplastic syndrome.
“Parts of his heart did not form,” said DiAngelo’s mother, Miracle Redrick. “So how do we have rooms that open and close to allow blood to enter? He was born like a wall. ”
118 days after one heart operation, De Angelo was sent home to wait for his next operation.
“We are very focused on keeping a close eye on their home,” said Sarah Plummer, pediatric cardiologist at UH Rainbow Newborn և Children’s Hospital. “But we would like them to return home. “It’s the best place for them if we can do it safely.”
A new digital home monitoring technology called “Hearts at Home” helps doctors track De Angelo remotely. Oxygen level, heart rate և weight can be monitored in real time through the app every day.
“There is room for them – to post photos, videos, additional information about how children are fed, poisoned, vomited, thrown or not,” says Plummer.
“We’re constantly on the iPad, on the desktop, watching where these families are,” said Yodi Ale Alsky, a nurse at UH Rainbow Baby Hospital. “We talk on the phone, we get things done quickly for these families to make sure nothing happens at home.”
Something happened to DeAngelo … he caught COVID. But even then, this little fighter stayed home.
“It allowed us to watch him from a distance, not to have to take him to the hospital,” said Plummer.
“He’s strong, he’s strong,” Redrick said. “He fights a lot.”
De Angelo is feeling better now as he waits for his next operation with his mom and dad.
Since launching the application in 2017. None of the children at UH Rainbow Infant և Children’s Hospital died while waiting for their next operation at home.
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